Proactive peer support for VHL patients in Canada

and their family members

Example Annual Expenses:

Cell phone Canada-wide: $180

P.O. Box Canada Post: $120Website hosting and domain (plus email): $130

Office supplies: $10

Significantly reduced...Internet -None for 2021-22: previously $1080 - free wifi

Cell phone - long distance $1000 - changed companies

Website hosting: changed companies

Previous: Used Desktop PC, printer, Toll-free #, Website analytics, etc.)

Weekly Chat, Private Posting Group, Individual Contacts and Blog/Email List Group

  • 2022: 390+h projected

  • 2021: 390+h

  • Since 2016, 850+ blog campaigns sent

Outreach: public awareness social media, website, intake, inquiries, blog, etc.

  • VHL Canada Public Page has 279 likes and 283 followers

  • Website has 900 unique visits annually

Other: Awareness, Administrative, etc.

  • 70h+ annually

* these peer support programs are the responsibility of our PSV only. PSV or Peer Support Volunteer is a permanent-professional-level position (who is also a patient).

Other Volunteer Activities or Work: Administrative, Board of directors, Book-keeping and record-keeping, Strategizing and planning (including compliance with CRA guidelines), Fundraising and awareness-raising, Maintaining records, in a physical “office” location

We are volunteer-run. We pay no salaries, just out-of-pocket expenses

Our activities, revenue and expenses are regulated by Charities Directorate, Canada Revenue Agency (CRA)

*Registered Charity Number BN: 800804676 RR 0001

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