When I go to the hospital with [my son], I try to make it like a "journÊe privilège". We bring a lunch and make a picnic with some food that he likes. I take time with him and we play together with special toys that we never [usually] play or we read new books... Yes I try to make a special day... He feels lucky to be alone with mom -Quebec

she is a hell of a fighter from day one. She's an optimistic kid" -Manitoba

"This is wonderful time have a group in Canada. My son and step daughter, 25, both have VHL. My son is 10 so I've joined on his behalf..." Alberta 2018