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VHL Canada

is a peer support and information network, mainly online and by phone, for, and by, Canadian VHL patients and their families. Started in 2016 to fill a gap, we're a small non-profit* that is run by volunteers including a permanent professional-level Peer Support Volunteer...More

In von Hippel-Lindau (VHL) Syndrome “the VHL gene mutation and the resulting over expression of the HIF protein produce both nonmalignant and malignant tumors”. It is a type of rare familial cancer syndrome”. More

Support & Information

I remember my mother speaking very fondly of you and the group, yes I would be honoured to have this posted....

Patient & Family

I had my first tumour in spine about 17 years ago...

I try to make it like a "journée privilège". We bring a lunch and make a picnic with some food that he likes.

*Registered Charity

BN: 800804676 RR 0001

Our activities, donations and expenses are regulated by Charities Directorate,

Canada Revenue Agency (CRA)