1/36,000 or 900+ people have von Hippel-Lindau (VHL) Syndrome in Canada
VHL Canada is a proactive peer support and information network for Canadian VHL patients and their families ... More
VHL Syndrome can produce benign tumors and malignant tumors in up to 10 organs. VHL is a rare genetic/inherited disorder and cancer… More
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*Registered Charity Number BN: 800804676 RR 0001