Blogs July-August 2024

Aug 2024

• VHL ‘quotes’ What are your favourites?

• VHL in Canada contacts = 242 update

• August blogs all re-read at least once up to 6 times!

• 175 Canadian VHL Patients and Family Members

• Perceived information and support needs study

• What… only 29 in your group?

• Screening and moderating many years

• VHL Patients Families Advances Research Clinical

• Updates to Support, Blog and Outreach Activity, Aug 19

• Research and winding down 2 - Playlist tips

• Not alone VHL family cancer syndrome, Aug 18

• Sleep research and winding down

• VHL Patients Families Advances Research

• Self-advocate support taking care, Aug 14

• Psychosocial Psychological VHL presentation

• Cheese slices Relaxation steps

• 31 blogs 2024 high open rates

• “Coping with VHL: Day-to-day coping varies greatly”

July

• Breathe? Focus? Take care?

• Strategies for Self-Regulation, Stress and Calming

• Peer Facilitator Training National Organization Family cancer syndromes

• VHL Canada Why do you keep talking about tension relaxation?

• Tense & Relax Before & After

June

• Genetic Testing Hereditary Cancer Brief Videos UHN Toronto Canada

• Navigation VHL Multidisciplinary Care

• 1,046 Blogs since 2016

• Tracking Social-emotional and Informational Peer Support

May

• Virtual VHL Day Refreshing Impressive!

• Canadian lives hang in the balance

April

• VHL Costs

• $12,000 VHL Medication

• I have never had more hope

March

• Dr. Kidney Donor Toronto Canada

• Surgical Multidisciplinary My Notes Example

• VHLC open rate

• Jan-Feb/24 tracking includes

• Many more Canadian city visits!

Feb

• ‘VHL charities’: context and understanding and empowerment

• VHL drug and psychosocial improvements

• Another “success” story new drug therapy

• Project manager position VHL

Jan

• My preparation notes pancreas eyes brain

• Children adolescent hospitals clinics Canada

• RN made VHL patient cry

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