We are also listed as resources/affiliations

Canadian VHL Alliance

VHL Alliance in the US “International Clinical Care Centers”

  • Contacts at University Health Network (Toronto General and Sick Children’s Hospitals

VHL Canada contact@vhlcan.ca

  • Henry Seo, MSW, RSW (Registered Social Worker), Peer Support Volunteer and Chair (Toronto, Ontario)

  • PM, R.N. Registered Nurse, Grand Falls, New Brunswick

  • More directors TBA

VHL awareness/fundraising events - photos

  • Special lighting: CN Tower (4 years); Niagara Falls (2 years); also in past with landmarks in Calgary, Edmonton and Peace Bridge (Ontario) Fund raisers: Scotiabank Toronto Waterfront Marathon (“Walk for VHL”, 3 years); other events and raffles; over 2000 BLOGS to email group since 2016; and Online groups (Facebook) and individual support (chat, text, email, or phone) since 2016. Blogs

VHL Awareness: National Links • Affiliations• Outreach• Fundraising