900+ Canadians with VHL
VHL Canada listed on Canadian Cancer Society
VHL Canada Towns Cities
Many more Canadian city visits!
Adoptions, blended families and children with VHL BC AB NL ON
Subscribers Stories ON, QC, AB, BC, NL, MB, (NS, NB, PE)
Researchers and Clinicians
Geneticist (Dr. Jane Green) NL Order of Canada
VHL NL, NB, ON Dr. Jane Green 1986
NL genetics awareness (article, Dr. Jane Green)
21 VHL patients Nova Scotia, journal, 2009
FDA Health Canada Others Collaboration Belzutifan Welireg
VHL - Canada’s Drug Approval
Your Data VHL Canada
My neurosurgeon became patient
Dr. Anonymous Kidney Donor Toronto Canada
Another Canadian VHL group
VHL research’s highest funder in Canada
Canadian Networking VHL Research Symposium
Virtual VHL Day Canada!
VHL RCC 17 researchers from Canada
Coping / Wellness
Strategies for Self-Regulation, Stress and Calming" (ementalhealth.ca)
Simple mental readiness tools Canadian Forces
Genetic Testing Hereditary Cancer Brief Videos UHN Toronto Canada
NUTS Model Techniques (CSHS, Montreal)
VHL Canada - our services and purpose
News
Rare surgery in Montreal allows 9-year-old girl to live normal life
Sask. couple struggles to pay for daughter's potentially lifesaving medication
Island pilot thanks strangers for kindness after losing wife [British Columbia]
Manitoba 1st province to strike pharmacare deal with federal government
Drugs for rare diseases: Common list of drugs ( (Welireg/Belzutifan, canada.ca)
4 drugs for rare diseases to be covered under New Brunswick deal with federal government
Hereditary renal cell carcinoma associated with von Hippel–Lindau disease: a description of a Nova Scotia cohort,
Canadian Urological Association Journal, 2009