• Brain and Spinal Cord - Brain/Spinal Hemangioblastomas (Tumours)

  • Pancreas ā€“ Cysts and Tumors (and rare cancerous tumours)

  • Kidneys ā€“ Cysts and Tumours (tumours are specific type of kidney cancer called Renal Cell Carcinoma [RCC])

  • Eyes - Retinal Hemangioblastomas *

  • Adrenal Glands - Pheochromocytoma and Paragangliomas (Tumours)

  • Reproductive System - Cystadenomas (Male Female)

  • Ears - Endolymphatic Sac Tumor (ELST) in Inner Ear

  • Liver- Tumours

  • Lungs - Tumours

* Short introductions of the tumours or manifestations of VHL are from the VHL Alliance "the preeminent resource and clearinghouse for VHL patient information". Download the VHL Patient Handbook for more in-depth information about manifestations and their treatment and The Active Surveillance Guidelines (to augment or your doctorā€™s or healthcare team's individualized plan).

Onset Chart (from Handbook) below...

VHL tumours or manifestations* are in: