Recent

• Belzutifan VHL Patient Feedback Canada

• Tracking 2024 and Update Oct 29, 2024

• 1,046 Blogs 2016-2024

900+ Canadians with VHL and their family members

• VHL Canada listed on Canadian Cancer Society

• VHL in Canada contacts = 242 update

• VHL Canada Towns Cities

• Many more Canadian city visits!

• Adoptions, blended families and children with VHL BC AB NL ON

• Subscribers Stories ON, QC, AB, BC, NL, MB, (NS, NB, PE)

• 21 VHL patients Nova Scotia, 2009

Research

• Geneticist (Dr. Jane Green) NL Order of Canada

• VHL NL, NB, ON 1986 Dr. Jane Green

• NL genetics awareness (Dr. Jane Green, article)

• FDA Health Canada Others Collaboration Belzutifan Welireg

• VHL - Canada’s Drug Approval

• Your Data VHL Canada

CVHLA - another Canadian VHL group

• VHL research’s highest funder in Canada

• Canadian Networking VHL Research Symposium

• Virtual VHL Day Canada!

• My neurosurgeon became patient

• Dr. Anonymous Kidney Donor Toronto Canada

• VHL RCC 17 researchers from Canada

Coping Wellness

• Strategies for Self-Regulation, Stress and Calming" (ementalhealth.ca)

• Simple mental readiness tools Canadian Forces

• Genetic Testing Hereditary Cancer Brief Videos UHN Toronto Canada

• NUTS Model Techniques (CSHS, Montreal)

VHL Canada - our services and purpose

• Members in online support and blog groups Jan 2025

• Tracking Dec 2024 (Support, Blog, Outreach)

• Tracking Oct 2024 (")

• vhlcan.ca traffic stats Dec 2024

• Peer Support Tracking Oct 2023

• Hope, Mission or Disclaimer

🍁 Living with VHL in Canadian context 🍁